A LIO Lipedema Italia - Associazione Nazionale Pazienti affetti da Lipedema dinamizou um webinar à volta do lipedema e das guidelines focalizando-se no último consensus (2020). Este webinar foi transmitido em várias linguas no FB, youtube e instagram.
Ao debate, completamente aberto, estiveram presentes as Associações de Doentes e a classe médica e cientifica.
Este foi o primeiro webniar que teve lugar e decerto nos seguintes outras Associações, Médicos e Cientistas vão querer estar presentes.
Fiquemos a aguardar. Sente-se a vontade e a necessidade de um diálogo aberto entre todos e de uma enorme colaboração por parte dos te´cnicos de saúde e da comunidade cientifica. Uma coisa é já certa:o muito mais pesquisa terá que ser feita para esta doença que está cada vez mais visivel.
No evento, publicitado no FB e ali poderemos ver mais detalhes sobre este evento que abriu a porta ao diálogo, No entanto deixo aqui a lista dos oradores participantes e das Associações que estiveram presentes:
Oradores:
Dr. Karen L. Herbst, MD, PhDDepartment of Medicine, University of Arizona; Karen Herbst, MD, PC, Los Angeles, CA, USADr. Sandro MicheliniDepartment of Vascular Rehabilitation and Oedema Management, San Giuseppe Hospital, NHS Marino (Rome), Italy, Past President ISL (International Society of Lymphology), Past President ESL (European Society of Lymphology), President of ITALF (Italian Lymphedema Framework)Q&A Discussants:Dr. Agostino Bruno,Department of Plastic and Reconstructive Surgery. Sant'Eugenio Hospital, Rome, ItalyDr. Marina CestariDepartment of Angiology NHS-Terni, Italy. Founder of Pianeta Linfedema and responsible for the ESL European Society of Lymphology Web SiteDr. Isabel Forner-Cordero, PhDPhysical Medicine and Rehabilitation Service, University Hospital La Fe, Valencia, SpainPaula M C Donahue, DPT, CLT-LANADepartment of Physical Medicine and Rehabilitation, Vanderbilt University Medical Center, Nashville, TN, USADr. Med. Yvonne FrambachHanse-Klinik, Lübeck, GermanyDr. Emily Iker, MDLymphedema Center, Santa Monica, CA, USALinda Anne Kahn, HHP, CMT, CLT-LANA, CHNCLymphatic Therapy Services, San Diego, CA, USALeslyn Keith, OTD, CLT-LANAThe Lipedema Project, Boston, MA, USADott. FT Sara Mantovani, FTStudioErre physical therapy center, Brescia, ItalyDr. Lucia Mazzolai, PhDAngiology Division Lausanne University Hospital, Lausanne, Switzerland. Chair of Lymphosuisse AssociationDr. Lindy McHutchison, MDThe Lipedema Center, Carolina Vein Center, Durham, NC, USAProfessor Christine Moffatt, CBE FRCN PhD MA RGN DNNottingham Trent University, UK. Chair International Lymphoedema FrameworkDr. Alberto Onorato, PhDLinfamed reahabilitation center, Udine, Italy, President of Associazione Lotta al Linfedema odv, ItalyDr. Jaime Schwartz, MD, FACSTotal Lipedema Care, Los Angeles, CA, USAMolly Sleigh, OTR/L, CLT-LANALighthouse Lymphedema Network, Atlanta, GA, USAProfessor. Dr. Med. Wilfried SchmellerHanse-Klinik, Lübeck, GermanyProfessor Dr Med. Uwe WollinaHead of Department of Dermatology and Allergology & Certified Skin Cancer Center, Städtisches Klinikum Dresden, GermanyDr. Thomas Wright MDLipedema Surgical Solutions, O’Fallon, MS, USA
as Associações de Doentes presentes:
Adalipe – Asociación de Afectadas de Lipedema de España. Maria Pacheco, (Secretary), AdalipeAMLF Association Maladie du Lipœdème France. Elodie Sauvageot (Chair), Aines Loghmari (Webmaster and facilitator), Rhislaine Vannson (Research and documentation collaborator)andLINFA - Associação Nacional de Doentes Linfáticos (Portugal). Manuela Lourenço Marques, (Chair), andLINFADALYFO - Dansk Lymfødem Forening, Lene Tofteng Hansen (Board member, responsible for supporting patients with lipedema)FDRS, Fat Disorders Resource Society, Cheyenne Brinson (President), FDRSLIO Lipedema Italia onlus (Italy), Valeria Giordano (Chair) and Alessandra Lisini (Board member), LIOLipedema Foundation, Felicitie Daftuar (Founder) and Guy Eakin (Chief Scientific Officer) of Lipedema FoundationLipedema Simplified, Catherine Seo, (Chair), Lipedema Simplified, USALipoedema Australia, Nola Young (President), Lisa Pyle (Secretary), Lipoedema AustraliaLipoedema UK, Sharie Fetzer (Chair) and Kate Forster (Secretary), Lipoedema UKLotta al Linfedema ODV, ItalyLymphoSuisse (Switzerland), Danaé Panchaud, (Member and author of lipoedeme.ch), LymphoSuisseNLNet, Nederlands Netwerk voor Lymfoedeem & Lipoedeem, Drs. Wouter Hoelen, (responsible for research) NLNet, Marije Strobos (lipedema experience expert) NLNetResilia - Linfa per la Vita. Maria Antonietta Salmè, (Chair), Resilia (Italy)SÖF Svenska Ödemförbundet (Sweden). Margareta Haag (Chair)Talk Lipoedema. Isobel MacEwan (Chair), Talk Lipoedema