Lipedema, not a closed case: A new International consensus

A LIO Lipedema Italia - Associazione Nazionale Pazienti affetti da Lipedema dinamizou um  webinar à volta do lipedema e das guidelines focalizando-se no último consensus (2020). Este webinar foi transmitido em várias linguas no FB, youtube e instagram.

Ao debate, completamente aberto, estiveram presentes as  Associações de Doentes e a classe médica e cientifica.

Este foi o primeiro webniar que teve lugar e decerto nos seguintes outras Associações, Médicos e Cientistas vão querer estar presentes.

Fiquemos a aguardar. Sente-se a vontade e a necessidade de um diálogo aberto entre todos e de uma enorme colaboração por parte dos te´cnicos de saúde e da comunidade cientifica. Uma coisa é já certa:o muito mais pesquisa  terá que ser feita para esta doença que está cada vez mais visivel. 

No evento, publicitado no FB  e ali poderemos ver mais detalhes sobre este evento que abriu a porta ao diálogo, No entanto deixo aqui a lista dos oradores participantes e das Associações que estiveram presentes:

Oradores:

Dr. Karen L. Herbst, MD, PhD

Department of Medicine, University of Arizona; Karen Herbst, MD, PC, Los Angeles, CA, USA

Dr. Sandro Michelini

Department of Vascular Rehabilitation and Oedema Management, San Giuseppe Hospital, NHS Marino (Rome), Italy, Past President ISL (International Society of Lymphology), Past President ESL (European Society of Lymphology), President of ITALF (Italian Lymphedema Framework)

Q&A Discussants:

Dr. Agostino Bruno,

Department of Plastic and Reconstructive Surgery. Sant'Eugenio Hospital, Rome, Italy

Dr. Marina Cestari

Department of Angiology NHS-Terni, Italy. Founder of Pianeta Linfedema and responsible for the ESL European Society of Lymphology Web Site

Dr. Isabel Forner-Cordero, PhD

Physical Medicine and Rehabilitation Service, University Hospital La Fe, Valencia, Spain

Paula M C Donahue, DPT, CLT-LANA

Department of Physical Medicine and Rehabilitation, Vanderbilt University Medical Center, Nashville, TN, USA

Dr. Med. Yvonne Frambach

Hanse-Klinik, Lübeck, Germany

Dr. Emily Iker, MD

Lymphedema Center, Santa Monica, CA, USA

Linda Anne Kahn, HHP, CMT, CLT-LANA, CHNC

Lymphatic Therapy Services, San Diego, CA, USA

Leslyn Keith, OTD, CLT-LANA

The Lipedema Project, Boston, MA, USA

Dott. FT Sara Mantovani, FT

StudioErre physical therapy center, Brescia, Italy

Dr. Lucia Mazzolai, PhD

Angiology Division Lausanne University Hospital, Lausanne, Switzerland. Chair of Lymphosuisse Association

Dr. Lindy McHutchison, MD

The Lipedema Center, Carolina Vein Center, Durham, NC, USA

Professor Christine Moffatt, CBE FRCN PhD MA RGN DN

Nottingham Trent University, UK. Chair International Lymphoedema Framework

Dr. Alberto Onorato, PhD

Linfamed reahabilitation center, Udine, Italy, President of Associazione Lotta al Linfedema odv, Italy

Dr. Jaime Schwartz, MD, FACS

Total Lipedema Care, Los Angeles, CA, USA

Molly Sleigh, OTR/L, CLT-LANA

Lighthouse Lymphedema Network, Atlanta, GA, USA

Professor. Dr. Med. Wilfried Schmeller

Hanse-Klinik, Lübeck, Germany

Professor Dr Med. Uwe Wollina

Head of Department of Dermatology and Allergology & Certified Skin Cancer Center, Städtisches Klinikum Dresden, Germany

Dr. Thomas Wright MD

Lipedema Surgical Solutions, O’Fallon, MS, USA

as Associações de Doentes presentes:

Adalipe – Asociación de Afectadas de Lipedema de España. Maria Pacheco, (Secretary), Adalipe

AMLF Association Maladie du Lipœdème France. Elodie Sauvageot (Chair), Aines Loghmari (Webmaster and facilitator), Rhislaine Vannson (Research and documentation collaborator)

andLINFA - Associação Nacional de Doentes Linfáticos (Portugal). Manuela Lourenço Marques, (Chair), andLINFA

DALYFO - Dansk Lymfødem Forening, Lene Tofteng Hansen (Board member, responsible for supporting patients with lipedema)

FDRS, Fat Disorders Resource Society, Cheyenne Brinson (President), FDRS

LIO Lipedema Italia onlus (Italy), Valeria Giordano (Chair) and Alessandra Lisini (Board member), LIO

Lipedema Foundation, Felicitie Daftuar (Founder) and Guy Eakin (Chief Scientific Officer) of Lipedema Foundation

Lipedema Simplified, Catherine Seo, (Chair), Lipedema Simplified, USA

Lipoedema Australia, Nola Young (President), Lisa Pyle (Secretary), Lipoedema Australia

Lipoedema UK, Sharie Fetzer (Chair) and Kate Forster (Secretary), Lipoedema UK

Lotta al Linfedema ODV, Italy

LymphoSuisse (Switzerland), Danaé Panchaud, (Member and author of lipoedeme.ch), LymphoSuisse

NLNet, Nederlands Netwerk voor Lymfoedeem & Lipoedeem, Drs. Wouter Hoelen, (responsible for research) NLNet, Marije Strobos (lipedema experience expert) NLNet

Resilia - Linfa per la Vita. Maria Antonietta Salmè, (Chair), Resilia (Italy)

SÖF Svenska Ödemförbundet (Sweden). Margareta Haag (Chair)

Talk Lipoedema. Isobel MacEwan (Chair), Talk Lipoedema